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All Good friends against poverty

Help this little boy, born in November 2019, to get surgery!

Help this little boy with Oro-facial cleft born in November 2019, to get surgery!

This baby boy was born in a small village, very far from the nearest medical centre. Her parents don't know who to turn to, or what to do. In Indonesia, the price of an intervention of this type is between $ 2'200 and $ 3'000 with a success rate of more than 90%! Poverty and lack of economic resources, combined with a lack of information and education, mean that families who need medical assistance and information are most of the time helpless. They don’t know what to do or who to contact. So lets do this together kawans!
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This baby born in Nov. 19 with a cleft palate | He lives in a very poor village in eastern Sumba and does not receive help!

#OroFacialCleft #KawanBaikSumba #KawanBaikIndonesia #Act4fairfuture #FairFutureFoundation

Hello kawan’s and friends, how are you? Can you help us to do something for this little boy? He’s born in November 2019!

He lives in a very small village in East Sumba (NTT), in which water is a rare commodity, electricity does not exist. Health solutions for this category of people living in the most rural regions and therefore far from everything, are most of the time impossible to reach. This is why we need to organise as soon as possible surgery for him.

Background – What is a Cleft Palate?

Cleft lip and cleft palate, also known as oro-facial cleft, is a group of conditions that includes cleft lip, cleft palate, and both together. A cleft lip contains an opening in the upper lip that may extend into the nose. The opening may be on one side, both sides, or in the middle. A cleft palate occurs when the roof of the mouth contains an opening into the nose. These disorders can result in feeding problems, speech problems, hearing problems, and frequent ear infections. Less than half the time the condition is associated with other disorders.

Cleft lip and palate are the results of tissues of the face not joining properly during development. As such, they are a type of birth defect. The cause is unknown in most cases. Risk factors include smoking during pregnancy, diabetes, obesity, and older mother, and certain medications (such as some used to treat seizures). Cleft lip and cleft palate can often be diagnosed during pregnancy with an ultrasound exam.

A cleft lip or palate can be successfully treated with surgery. This is often done in the first few months of life for cleft lip and before eighteen months for cleft palate. Speech therapy and dental care may also be needed. With appropriate treatment, outcomes are good.

Cleft lip and palate occurs in about 1 to 2 per 1000 births in the developed world. Cleft lip is about twice as common in males as females, while cleft palate without cleft lip is more common in females. In 2017, it resulted in about 3,800 deaths globally, down from 14,600 deaths in 1990. The condition was formerly known as a “hare-lip” because of its resemblance to a hare or rabbit, but that term is now generally considered to be offensive.

 

Psychological Issues

Psychosocial issues

Most children who have their clefts repaired early enough are able to have a happy youth and social life.[citation needed] Having a cleft palate/lip does not inevitably lead to a psychosocial problem. However, adolescents with cleft palate/lip are at an elevated risk for developing psychosocial problems especially those relating to self-concept, peer relationships, and appearance. Adolescents may face psychosocial challenges but can find professional help if problems arise.

A cleft palate/lip may impact an individual’s self-esteem, social skills, and behavior. There is research dedicated to the psychosocial development of individuals with cleft palate. Self-concept may be adversely affected by the presence of a cleft lip or cleft palate, particularly among girls. Negative outcomes can also be associated with the long duration of hospitalization. Psychological issues extend not just to the individual with CLP but also to their families, particularly their mothers, that experienced varying levels of depression and anxiety.

The complications for the parents

Complications

Cleft may cause problems with feeding, ear disease, speech, socialization, and cognition.

Due to a lack of suction, an infant with a cleft may have trouble feeding. An infant with a cleft palate will have greater success feeding in a more upright position. Gravity will help prevent milk from coming through the baby’s nose if he/she has a cleft palate. Gravity feeding can be accomplished by using specialized equipment, such as the Haberman Feeder. Another equipment commonly used for gravity feeding is a customized bottle with a combination of nipples and bottle inserts. A large hole, crosscut, or slit in the nipple, a protruding nipple, and rhythmically squeezing the bottle insert can result in controllable flow to the infant without the stigma caused by specialized equipment.

Individuals with cleft also face many middle ear infections which may eventually lead to hearing loss. The Eustachian tubes and external ear canals may be angled or tortuous, leading to food or other contamination of a part of the body that is normally self-cleaning. Hearing is related to learning to speak. Babies with palatal clefts may have compromised hearing and therefore, if the baby cannot hear, it cannot try to mimic the sounds of speech. Thus, even before expressive language acquisition, the baby with the cleft palate is at risk for receptive language acquisition. Because the lips and palate are both used in pronunciation, individuals with cleft usually need the aid of a speech therapist.

Tentative evidence has found that those with clefts perform less well at language.

Aim of this action

Aim of this action

This little boy born in November 2019. He lives in a very small village in East Sumba (NTT), in which water is a rare commodity, electricity does not exist. Health solutions for this category of people living in the most rural regions and therefore far from everything, are most of the time impossible to reach.

Oro-facial cleft (OFC) remains a prominent health issue in developed and developing countries alike. Mounting evidence suggests a polygenic, multifactorial and a list of epigenetic events. With a worldwide prevalence of approximately 1.2/1000 live births, OFCs are the commonest craniofacial birth defects in humans.

Why this action

Why

Poverty and lack of economic resources, combined with a lack of information and education, mean that families who need medical assistance and information are most of the time helpless. They don’t know what to do or who to contact.

We met this family in November 2019, a few days after the baby was born. The midwife and the doctor installed a gastric tube directly after his birth so that her mother could feed him with a syringe. But since his birth, no one has come to see him, neither he nor his family. Since then, we are very often there to give help and support. But we need to do much more now!

How we will proceed?

How

Although there are different schools of thought in this area, most plastic surgeons believe that the ideal age of the patient to undergo Oro-facial cleft repair surgery is between 6 and 18 months, although the preferred age for the repair of the cleft lip is generally much earlier, at around 10 to 12 weeks old.

  • Cost: An Oro-facial cleft surgery in Indonesia or cheiloplasty ranges from $ 2,200 to $ 3,000.-;
  • Hospital: The patient is asked to stay in the hospital for 5 days;
  • Success rate: About 90%. However, in a few cases, speech problems may occur. This means that the child’s voice is hypernasal;
  • This is why we need a little bit more than $3,000.- to give a chance to this baby to receive surgical treatment.

Thank you very much for your concrete help and your love, to offer a bright future to this little boy!

You can find the project and or more complete information, on this project initiated by Fair Fair Indonesia and Kawan Baik Indonesia, by clicking on one of the buttons below! Thank you so much.

Kawans already donate for this cause!

PL

Philippe Lautier

CHF 100.00 February 5, 2020
SM

Suzanne Melber

CHF 28.64 February 4, 2020
RZ

Rolf Zen-Ruffinen

CHF 50.00 February 3, 2020

Un merveilleux cadeau... Merci de tout coeur!

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